Mum of girl with rare hair condition told she ‘looks a state’ by cruel strangers

Florence Patterson’s thick, wiry hair attracts attention wherever she goes, with some cruel strangers asking her parents if they’ve bothered to brush her barnet recently

Florence has Uncombable Hair Syndrome

Strangers presume her poor parents can’t be bothered to tame her daughter’s unruly locks.

But as this six-year-old girl shows, there really is such a thing as Uncombable Hair Syndrome, and Albert Einstein also had it.

Florence Patterson’s look is the result of an extremely rare medical condition, caused by a gene mutation, which means her hair follicles are heart-shaped rather than round.

Florence, from Newcastle, has had to be taught by her parents to bat off strangers who are ‘always trying to grab’ her hair.

Her parents Jill Peddie-Jones, 43, and Kyle Patteson, 49, say they have to face rude comments from strangers who have been heard exclaiming ‘look at the state of that child’ – without realising that it is a medical condition.

Florence has Uncombable Hair Syndrome, which means it can’t be combed flat.


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The six-year-old loves her striking barnet


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Some even try to grab and touch Florence’s hair without asking – forcing her mum and dad to have to teach Florence to tell them off.

They also prompt Florence to embrace her bushy mane and adorable photos show the youngster proudly showing off her luscious locks in her uniform on her first day back at school.

Consultant Jill, from Newcastle, said: “Florence is aware that everyone stares at her.

“Strangers touch her or grab her hair so we’ve taught her to tell them off and tell people that they can’t touch her.

“It’s been pointed out that her hair is similar to Einstein’s. We get quite a lot of derogatory comments about how we should have brushed her hair or comments like ‘look at the state of that child’.

Her parents have taught her to ignore the ignorant comments


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It is believed Albert Einstein also had Uncombable Hair Syndrome


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“It does make you angry, but you have to walk away. It was strange after lockdown, when we started going out again, because I had forgotten how much attention she gets.

“Wherever we go, people walk past with their mouths wide open. We do get nice comments as well but most of the negative attention she gets is from adults, they aren’t as accepting as kids.

“Everyone in the area knows her as the baby with the hair.”

Lawyer Kyle added: “Florence is confident, that’s how we’ve brought her up.

“She’s always attracting attention whether it’s wanted or unwanted so she needs to be prepared for that in later life.

“We don’t want it to define her but we know that some people will define her by her hair so she just need to embrace it.

“It’s part of her personality. People have accepted her at school and she’s got loads of friends because her personality shines through.”

The year one pupil has three sisters, Laura, 20, Amelia, 15, and Heidi, 12, none of which have the syndrome.

Her father says trying to run a comb through Florence’s hair is impossible but the family have found their own way of managing it.

Kyle said: “[Combing her hair] is impossible to do.

“We’ve found our own way to manage it which is to wash it in the bath, not in the shower because it doesn’t soak up water and will stay bone dry, towel dry it, leave the conditioner in, scrunch it and pick out all of the dreadlocks which takes ages but the next day she’ll have the most fabulous, blonde curls.

“Then the next day it’s frizzy again. If you try to manage it in a way that you’d manage normal hair, you’re fighting a losing battle.

“We’ve also been advised not to do that because her hair just comes out and it’s very uncomfortable for her.

“The condition also makes her nails grow incredibly fast. We have to trim them once or twice a week.”

Florence has had frizzy hair since she was one but she was diagnosed when she turned three after it was spotted by a doctor who thought the cause could be something more serious.

Jill said: “We noticed quite early on that her hair was unusual, probably when she was around one but we just thought it was funny.

“When she was about three, we were selling a table on Gumtree and the man who came to pick it up was a GP and he suggested that we take her to a doctor to get checked out.

“He thought she had a different syndrome so he thought it was important to get her heart and eyes checked but she was diagnosed with Uncombable Hair Syndrome which just affects her hair and nails.”

Kyle added: “Her hair doesn’t grow that fast but its very thick, which makes her overheat.

“It wasn’t noticeable when she was born but when she was about one, it started sticking up in different directions.

“It was just part of her personality.

“Luckily Florence’s condition isn’t more serious but if there are parents out there thinking their child might have the condition they should go to the GP because it could be something more serious.”

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